SOUL (Skin Outcomes Uncovered in Lupus) Study

What is SOUL?

The Skin Outcomes Uncovered in Lupus (SOUL) Study is a large project led by the Division of Rheumatology at Emory University to better understand important outcomes in people with some types of skin lupus.

Who can participate?

Patients with a diagnosis of Discoid Lupus, Lupus Panniculitis and other types of lupus that cause permanent changes in the skin are eligible to participate in the SOUL study.

How you can help?

We need the participation of as many people with Discoid Lupus, Lupus Panniculitis and other types of lupus that cause permanent changes in the skin.

By learning from patients with specific types of skin lupus like you, we can help to bridge the gaps that still remain in our understanding of the impact of skin lupus in the physical, emotional and social aspects of patients’ life.

Your participation involves filling out annual surveys over the next 3 years. You will also have opportunity to donate blood to better understand how skin lupus may progress to other areas of your body.

Contact Us For More Information

Please fill out the following form and we will contact you with more information.
You may also contact info@lupusingeorgia.org or call 404-778-3037.

"*" indicates required fields

I have been diagnosed with:*

1. Have you had a similar rash with associated patches of hair loss on your scalp?*
If YES, please select which picture looks most like your rash:
2. Have you had a similar rash in your ear?*
3. Have you had a similar rash on your skin?*
If YES, please select which picture looks most like your rash:
Have you had a similar rash on your skin?*
My skin lupus has been diagnosed and/or managed by a:*
I consider my race to be:*
Name*
Address*
What is the best method of contact?*